Tuberous Sclerosis News

  • NHS England Agrees to Fund Everolimus for SEGA

    We are delighted to announce that NHS England will now routinely fund Everolimus for inoperable TSC brain tumours (SEGA). This means that NHS England have reversed their previous decision made thi..

  • EUPATI Toolkit

    The European Patients Academy on Therapeutic Innovation (EUPATI) has developed a toolkit to provide information for anyone who is interested in learning more about the medicines research and devel..

  • Christmas and New Year opening hours

    Please note that from December 23, 2016 to January 3, 2017 we will be offering a reduced cover service. Should you need to contact a TSA Adviser, or any other member of staff, over the Chris..

  • Individual Funding Requests (IFRs) survey

    Patient experiences of Individual Funding Requests (IFRs) survey. Have you accessed a treatment for TSC through an Individual Funding Request (IFR)? Have you failed to gain access to a tr..