NEWSFLASH... Six places to take part in this September's Great North Run (http://www.greatrun.org/great-north-run) are still available to runners from across the UK who would like to complete ..
We are delighted to announce that NHS England have released the prescribing policy for the treatment of angiomyolipomas (AMLs) in patients with Tuberous Sclerosis Complex. Please find the pol..
Researchers at Cardiff University are pleased to confirm that they will be opening a centre in Glasgow in June 2016 to aid recruitment to the TRON study. This may be of interest to our com..
Genetic Alliance UK are currently conducting the 'Hidden Costs' study - a study which is testing the feasibility of researching the costs associated with managing rare conditions. The research team ar..