When Everolimus was licensed for the treatment of TSC none of us imagined that years later we would still be fighting for access. Over the past 2 years, the TSA has been supporting the development o..
1 April, 2015 | By Shaun Lintern NHS England has been accused of misleading government ministers and labelled a ‘dysfunctional organisation’ over delays in drawing up a prescribing po..
Greg Mulholland MP has secured a parliamentary debate entitled ‘Access to drugs for ultra-rare diseases’! It’ll be next Tuesday, 16th June, 2.30pm-4pm, so a whole hour and a half of ..
NHS England has now published the long-awaited urgent and critical need policy. If you or someone you care for has had an individual funding request rejected for access to Everolimus, and their ne..