Tuberous Sclerosis News

  • #Fight4Treatment, the time to act is now

    Rare Disease Day, 29th February 2016 We are expecting that NHS England will give their decision on whether the NHS in England will fund Everolimus for TSC patients with SEGA’s and AML in Ma..

  • TSA Big Day 2016

    SAVE THE DATE: 17th September 2016 Where: Nottingham Belfry, Mellors Way, Off Woodhouse Way, Nottigham, NG8 6PY Event details: At this full day event you will have a chance to ..

  • TS Care Treatment - Are you receiving it?

    A new report shows that many people with TS may not be receiving the right care and treatment. TSA Trustee Dr Chris Kingswood and our CEO Dr Jayne Spink are both amongst the authors of the re..

  • EUPATI launches a new educational Toolbox on Medicines Research & Development

    The European Patients Academy on Therapeutic Innovation (EUPATI) has launched a toolkit to provide information for anyone who is interested in learning more about the medicines research and developmen..