It's Rare Disease Day 2017 (http://www.rarediseaseday.org/) on February 28 - the day during which as many people as possible who are affected by rare diseases in any way aim to increase awareness ..
We are upgrading our computer systems and this means that there will be a temporary interruption to our normal email service from 4pm on Wednesday, January 18 to 9am on Wednesday, January 25. ..
Why not volunteer to help us to review our information factsheets? If you can spare some time to read new drafts and send us your feedback in your own time we would really appreciate it. ..
We are planning the workshop topics for the next#TSABigDay (https://www.facebook.com/hashtag/tsabigday) in September 2017. Within our remit we have the capacity to run 3 workshops, which ..