Genetic Alliance UK are currently conducting the 'Hidden Costs' study - a study which is testing the feasibility of researching the costs associated with managing rare conditions. The research team ar..
Fundraiser, David Cropper, is running 110 miles for the TSA. Friend to the Dale family, David has decided to run for their son Sam, who has TSC. He is running to support our #Fight4Treatment campa..
Our new Tea & SCones for TSC 2016 video, starring the wonderful Collins family (Jessica, Josh, Oska, Ollie, and mum and dad, Victoria and Dale, as pictured below) from Cardiff, is now on our Y..
A massive #VLM2016 thank you to our five fantastic @LondonMarathon runners Dan Morbin, David Donovan, Hollie Light, Ken Welby and Mark Holland - who have – between them – raised a who..