It's just one month to go until the Virgin Money London Marathon 2017 and our six London Marathon #TeamTSA members are all doing a fantastic job raising funds to fight TSC as well as raising aware..
Rare conditions affect approximately 1 in 17 people in the UK. Although they are living with lots of different conditions, and only 5% have approved treatments, too many face similar challenges wi..
If you are interested in research into TSC, and its impact on wider medicine, then please take a look at this fascinating article by Cardiff University (https://www.cardiff.ac.uk/people/view/..
This year’s Rare Disease Day (http://www.rarediseaseday.org) focus is research. Today, February 28, patient organisations are busy highlighting so much of the fantastic research currently be..