Tuberous Sclerosis News

  • Rare Disease Day 2017

    It's Rare Disease Day 2017 (http://www.rarediseaseday.org/) on February 28 - the day during which as many people as possible who are affected by rare diseases in any way aim to increase awareness ..

  • IT switchover - emails affected

    We are upgrading our computer systems and this means that there will be a temporary interruption to our normal email service from 4pm on Wednesday, January 18 to 9am on Wednesday, January 25. ..

  • Volunteers needed to review our factsheets

    Why not volunteer to help us to review our information factsheets? If you can spare some time to read new drafts and send us your feedback in your own time we would really appreciate it. ..

  • TSABigDay 2017 workshop topics

    We are planning the workshop topics for the next#TSABigDay (https://www.facebook.com/hashtag/tsabigday) in September 2017. Within our remit we have the capacity to run 3 workshops, which ..