Tuberous Sclerosis News

  • Treat Me Well - Mencap's new campaign

    Have you ever left the GP not quite knowing what they have said to you? Treat Me Well is Mencap's new campaign to transform how the NHS treats people with a learning disability in hospital. ..

  • #RareDiseaseDay2018 #ShowYourRare

    Wednesday February 28 is Rare Disease Day 2018 and we would like as many people as possible who are affected by TSC to mark this day to help raise awareness of rare diseases amongst the gener..

  • Blue Badge consultation - have your say

    People with hidden disabilities could soon have greater access to blue badges under plans announced by Transport Minister Jesse Norman on 21 January 2018. The proposals, which could see ..

  • Everolimus for Epilepsy - campaign update

    We have submitted feedback to NICE on the draft policy document regarding Everolimus for Epilepsy and the integrated impact assessment. Our CEO Maxine Smeaton has this week received notice th..