NEWSFLASH Our #Fight4Treatment has made The Daily Express newspaper today with an compelling interview with Samantha-Jayne Harding, mum of Toby-Jay, who has TSC, of Westcliff. If you would..
Today we are absolutely delighted to be able to announce the winner of this year’s children’s design a Christmas card competition... and it is four-and-a-half year old talented artist and bi..
Here is the text in full of the letter published in today's The Times newspaper, in which NHS consultants express their shock and disappointment at NHS England's recent decision regarding the prov..
NHS England devastating U-turn on drug treatment for brain tumours Last year NHS England promised to develop an in year policy for the use of Everolimus to treat SEGA (brain TSC related tu..