Patient experiences of Individual Funding Requests (IFRs) survey. Have you accessed a treatment for TSC through an Individual Funding Request (IFR)? Have you failed to gain access to a tr..
Our #Fight4Treatment campaign has also been featured on BBC Radio York this morning. You can find out more, and listen to the radio report, here: http://www.bbc.co.uk/news/live/uk-england-york..
Our #Fight4Treatment was featured on page 62 of the Mail on Sunday, October 9 - you can read it on the link here. http://www.dailymail.co.uk/health/article-3828549/NHS-accused-abandoning-child..
We are thrilled to be able to tell you that this year we are fielding our biggest number of runners ever to tackle the iconic Great North Run for us on Sunday, September 11. Here is a list o..