This year’s Rare Disease Day (http://www.rarediseaseday.org) focus is research. Today, February 28, patient organisations are busy highlighting so much of the fantastic research currently be..
We were recently joined by nine employees from top fashion label White Stuff (http://www.whitestuff.com) who gave up a day of their time to volunteer for us. The nine - Nick Bradley, Nico..
The Observer newspaper has run an article on a letter signed by 30 members of the Specialised Healthcare Alliance (SHCA) including the Tuberous Sclerosis Association calling on the Prime Minister ..
Our first ever CEO, Dr Jayne Spink, will be stepping down in April after 5 years with the TSA. Since Jayne joined the TSA we have seen an unparalleled period of growth and expansion, and we would ..