Huge thanks to Carmarthenshire-based TSA Ambassador Marie James, and her husband Perry James, a member of the TSA's Research Committee, who attended the Genetic Alliance UK Rare Disease Day 2..
It's just one month to go until the Virgin Money London Marathon 2017 and our six London Marathon #TeamTSA members are all doing a fantastic job raising funds to fight TSC as well as raising aware..
Rare conditions affect approximately 1 in 17 people in the UK. Although they are living with lots of different conditions, and only 5% have approved treatments, too many face similar challenges wi..
If you are interested in research into TSC, and its impact on wider medicine, then please take a look at this fascinating article by Cardiff University (https://www.cardiff.ac.uk/people/view/..