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  • COordiNated Care Of Rare Diseases (CONCORD) survey: Have your say on how services should be coordinated for people with rare or undiagnosed conditions

    CONCORD is a research study which aims to investigate how services are currently coordinated for rare conditions and how the..

  • TSA Events

  • Great North Run - Sunday 8 September 2019

    Date of Event: 08-Sep-2019

    Join our support squad Since then the Simply Health Great North Run has grown beyond all expectation to become one of t..

  • Jeans for Genes

    Date of Event: 16-Sep-2019

    We all love denim and we all want a cure for TSC. Between Monday 16 – Friday 20 September, combine the two and..