About us
The Tuberous Sclerosis Association (TSA) was formed in 1977 by a group of parents, affected indiviudals and doctors interested in promoting greater understanding of the condition and providing mutual support for affected families. The TSA has three main areas of activity: Support Services, Research, and Appeals and Publicity.
The TSA is a membership organisation and is open to anyone affected by Tuberous Sclerosis (TSC) or who has an interest in TSC. For more information visit our membership page.
Support Services
The TSA is an important source of help for those affected by TSC and their carers.
- Published information
- Regional advisers
- Study days and in-house training.
- Events for families and individuals.
Research
The TSA plays a major role in TSC research has supported the following breakthroughs:
- TSC genes identified and diagnostic blood test
- understanding of TSC molecular mechanisms
- first clinical trial of treatment specific to TSC
Appeals and Publicity
Since 1977 we have raised over £9 million for TSC research and support services.
- Many thanks to all those individuals, trusts and companies who have helped
- We continue to work to change attitudes and improve services for people with TSC
