Tuberous Sclerosis Association
Tuberous Sclerosis Association, UK

Videos & podcasts

A number of other websites have posted videos and podcasts that may be of interest to some families and individuals affected by TSC.

Videos

Genetic Alliance UK (formerly Genetic Interest Group) has video clips about living with a genetic condition (an individual with TSC is the first person featured in all the clips).

The TSAlliance (USA organsation) have produced a video clip showing Infantile Spasms in TSC.

The National Autistic Society has a page of personal stories, thoughts, reflections, short films, articles and lecture transcripts about life on the spectrum from people with autism spectrum disorders.


Podcasts

The National Society for Epilepsy (NSE) podcasts combine real life personal stories with factual information from NSE.

Contact a Family podcasts include an interview with a mum, giving an honest account of having a son with autism. Others are about education and financial support.

This USA site, run by parents and educators, has interviews with parents, therapists, and other experts about the latest trends in working with children on the autism spectrum.


TSC personal stories

Visit our on-line discussion forum where you can read stories from others living with TSC and make contact with people with similar experiences whether a parent, a person with TSC or a sibling.