Tuberous Sclerosis Association
Tuberous Sclerosis Association, UK

New diagnosis

If you are reading this it is probably because your child, you, or a close family member has recently been given a diagnosis of Tuberous Sclerosis Complex (TSC). Perhaps you are feeling confused, angry, alone or afraid.

Please know that you are not alone. The Tuberous Sclerosis Association can help you. You will find lots of information on this website about TSC and TSA support services, but sometimes it is difficult to know where to start. The following sections are written with you in mind.


Babies and children

For parents who have a child diagnosed with Tuberous Sclerosis Complex?

Read more


Adults and teenagers

For people diagnosed with Tuberous Sclerosis Complex when adults or teenagers.

Read more


If you would like more information, or you simply wish to talk to someone, contact one of our Specialist Advisers. Visit the in your area pages to find the adviser for your area or use the contact form.